tag:blogger.com,1999:blog-1108257599100975135.post7757426700737633789..comments2023-10-28T03:04:20.716-07:00Comments on Amazing Baby Grace: From the Outside Looking In~ Feliciahttp://www.blogger.com/profile/03494048858499340242noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-1108257599100975135.post-54954892754878539682012-02-23T12:13:40.494-08:002012-02-23T12:13:40.494-08:00One of the reasons why I was terrified to reveal t...One of the reasons why I was terrified to reveal to my family that my daughter was suspected of having high functioning autism is because of their lack of empathy and their lack of ability to understand of this. I rejected the school's help at first, because I was terrified of the Autism label-mainly because of other's ignorance. Its sad really. But I got a grip. I really appreciate your perspective.Jessicahttps://www.blogger.com/profile/05006509705823249836noreply@blogger.comtag:blogger.com,1999:blog-1108257599100975135.post-83437036250963002472011-01-03T19:29:42.648-08:002011-01-03T19:29:42.648-08:00My SISTER used the "r" word in MY car! I...My SISTER used the "r" word in MY car! I was livid. I know it was unintentional but none the less, I was stunned. I have been told by some of my family I over reacted, she refuses to apologize for a mistake. Your so right on the outside looking in. I am so hurt and they just don't get it.Calliehttps://www.blogger.com/profile/14150210720470595314noreply@blogger.comtag:blogger.com,1999:blog-1108257599100975135.post-3071233561330717592010-11-16T11:54:25.334-08:002010-11-16T11:54:25.334-08:00I get that "is he downs" crap everytime ...I get that "is he downs" crap everytime we leave the house!! I just look at them and give them my "ur a dumbass" look and say, "nope, he is AAsher. He haaaassss Down syndrome, but there is nothing downs about that."<br /><br />Over reacting???? I think not! It's ignorance and unwillingness to take blame that I can't stand!! You better believe I point out to people that say such things and do you know that 9 out of 10 try to convince ME that it's OK!! What?????? I have lost many people that I thought were my friends because of statements like these. If they can't see how hurtful their words are and change, then we don't need them. I always make sure to let them know that they may not understand what it's like to be, or have a child or someone they love with "special needs", but that they could get hit by a car on the way home today and become a member of the "special needs" community real quick! (I really hate those two words) <br /> AAsher's DS diagnosis came with some thick skin and a flat out "I will tell you exactly how I feel" attitude for me. <br />Tell me who she is Felicia, I will go kick their ass for you :-) N-O-B-O-D-Y says things that could hurt our mommy Felicia & Gracie and gets away with it!!txkerrihttps://www.blogger.com/profile/12918412840508320589noreply@blogger.comtag:blogger.com,1999:blog-1108257599100975135.post-71923111712147181652010-11-16T11:02:35.396-08:002010-11-16T11:02:35.396-08:00I have been thinking about lots of these things re...I have been thinking about lots of these things recently...<br />especially how no matter how much i dont want to think about Ds, it stares me right at the face, right after Ethan... and people who might be fed up with my "over reacting" but they have not an ounce of knowledge what goes through my heart and mind each second of my life... I've said before, if they had a child like ours, they would be dancing to the same beat...erikatxhttps://www.blogger.com/profile/16032539100300397178noreply@blogger.comtag:blogger.com,1999:blog-1108257599100975135.post-84511872631017702482010-11-16T08:51:20.518-08:002010-11-16T08:51:20.518-08:00Felicia, I couldn't have said it better myself...Felicia, I couldn't have said it better myself! We may be new to the DS world, but as DS mothers we are united! It is always hurtful when you hear an ignorant person misusing medical terminology, even if they are not referring directly to your child. Also, I must say, it struck me hard when you wrote about the "sympathetic" smiles you get from strangers -- Whenever we get "the look" I want to scream at them "Don't feel sorry for us! We are BLESSED!" -- Our son has blessed us beyond words and even though life may be more challenging for him, he will NEVER question whether or not he is loved. I too believe families are chosen for these special gifts, and visaversa - most of the time, I feel like we needed our son more than he has ever needed us! Keep on writing, Felicia, you are a voice for so many!Liz Shawhttps://www.blogger.com/profile/01061162082959063368noreply@blogger.comtag:blogger.com,1999:blog-1108257599100975135.post-10758145913107190162010-11-16T07:13:06.821-08:002010-11-16T07:13:06.821-08:00As a mother of a precious daughter with Down Syndr...As a mother of a precious daughter with Down Syndrome I so appreciate your words. My "baby" is 10 years old and the feelings you mentioned are things I fully understand and have felt for the past almost 11 years. You are so blessed, as we are with such a precious gift, but with that gift comes many difficulties. Like you said, I wouldn't change anything because then she wouldn't be the precious little girl we love so, but it still hurts to have any struggles with your kids and to see them struggle in any way. God Bless You on your journey!!Jeannie Peopleshttps://www.blogger.com/profile/06828565470444631713noreply@blogger.comtag:blogger.com,1999:blog-1108257599100975135.post-56633698981087189392010-11-16T01:21:07.129-08:002010-11-16T01:21:07.129-08:00You could have grabbed this post right out of my o...You could have grabbed this post right out of my own head! We walk a similar path but we reap similar blessings. There is nobody like my precious Ezekiel (and his extra chromosome) to brighten my day! Grace is gorgeous and, with or without T-21, you can tell she would be! You do a great job in this post of educating but even more, you put a face and a heart on parenting a special blessing!N.E.https://www.blogger.com/profile/05926459625595466455noreply@blogger.comtag:blogger.com,1999:blog-1108257599100975135.post-67636745067027031122010-11-15T21:47:43.823-08:002010-11-15T21:47:43.823-08:00I'm not just saying this...
She really is beau...I'm not just saying this...<br />She really is beautiful! And it sounds like she has a beautiful Mother, too.Melishahttps://www.blogger.com/profile/12883210901133041950noreply@blogger.comtag:blogger.com,1999:blog-1108257599100975135.post-3983257528470453172010-11-15T19:31:10.900-08:002010-11-15T19:31:10.900-08:00Any parent that doesn't have a child with spec...Any parent that doesn't have a child with special needs should understand this: When you use retarded or special ed in another context, you are saying, "You know, retarded like your daughter" or "You know, special ed, like your son" to the parent of a special needs child. Any parent that thinks it is over reacting is being deliberately obtuse.Kimberlyhttps://www.blogger.com/profile/11452366492486662984noreply@blogger.com